Samara Rose Ingraffia, 25, from Grand Rapids, Michigan,
suffers from erythromelalgia or Man on Fire syndrome, which leaves her feeling
like she is experiencing constant second degree burns. In addition, Ms
Ingraffia also suffers from Renauld's syndrome - an equally rare condition that
means her body reacts dramatically to the slightest drop in temperature. Ms
Ingraffia can only be exposed to a temperature of 17 degrees Celsius - anything
higher or lower will lead to incredible suffering, and she is virtually
housebound
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